On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Thursday, January 7, 2010

I forgot to update..

Last week Rassie went back to the physical medicine doctor for his back because worker's comp is playing games when it comes to the physical therapy he NEEDS!  Worker's comp told Dr. F that they denied the claim because they didn't think physical therapy was needed for.... drum roll please.... BACK ACHE!  Are you kidding me? Rassie CAN NOT walk.  What about this they cannot get through their heads sure beats the heck out of me.   So Dr. F spent alot of time on the phone with worker's comp and here it is over a week later and we're still waiting.  This is getting old and fast.  We're being as patient as we can while staying on top of things on a daily basis.  That's all we can do right now.  We do as much PT here at home as we can and some days my brother and I help Rassie to stand with the walker.
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Rassie had a follow up type of appointment in oncology today. He saw Dr. W.  Everything is looking good.  All of his counts are normal.  He only has to do labs once a month now and will be seen again in 2 months.  He no longer has to take the allopurinol for the uric acid caused by the killing off of white blood cells (that was being caused by the hydrea that he is no longer on since he's on Gleevec).

Rassie went over all his symptoms from head to toe, including the ones caused by the accident.  Once again we were reassured that the CML or the Gleevec does NOT cause paralysis and so on.  The doctors have made sure to put this in their notes just because of worker's comp trying to play games here and there. The denial letter we received from workers comp for Rassie's PT stated that Rassie lost his balance and fell before being struck by a cable and that he was recently diagnosed with leukemia prior to the accident.  Rassie actually slipped in oil based mud on the rig floor during the RAIN. It was not just some random loss of balance because of his CML. It was hazardous work conditions.   He was then struck in the back with a cable not once but twice and never actually fell all the way to the ground.

Dr. W also referred Rassie back to neurology (worker's comp related) because Rassie is still having some cramping in his back and his left arm goes numb on occassion.  Dr. W said this is not anything caused by the CML or Gleevec and so he should probably be looked over by neurology once again.

So that's about it, in a nutshell.

God Bless & Good Night

4 comments:

Holly said...

Grrr they make me so mad!! It's good that you are still doing some PT at home. That def helps!

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