PM&R Appt. Today

No update on the CML.  Rassie has labs tomorrow and we should know the results by the afternoon or Monday.  As far as we know this far his numbers are all in the normal range.

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Rassie had a PM&R* appointment today. The nurse case manager "D" for the worker's compensation insurance attended this appointment.  So far, we are still waiting for physical therapy to be approved.  Dr. F made it known that he had tried several times to return contact with the insurance doctors whom he never got through to and that there was no way any of the numbness/tingling or paralysis was due to his CML.  He also said he could not believe that the worker's compensation insurance doctors would let Rassie go this long without physical therapy.   "D" asked if Dr. F could give a different or new diagnosis for Rassie's condition and he said "No" that he was sticking to his original diagnosis of paraparesis and that the nuerapraxia the worker's comp. insurance keeps referring to is only a partial diagnosis and they need to get that fixed.  So now we are going for Round 3 of getting approval for physical therapy.

The nurse case manager also told Rassie she thinks its going to be a long while before he gets better and he should consider finding another job.  Not likely. He's on worker's comp for a work related insurance. She also said he should consider going to school during his down time just in case he can't get back to where he was before.  We're going to check into that and see if we can't possibly get it paid for.

Rassie's been having blackouts.  We took him to the ER on Monday night I believe (my days are all messed up).  Everything is leading back to it being a medication called nuerontin that is used for nerve pain.  All tests are coming back normal for everything else.  Rassie's primary care doctor had written a RX to switch him over to Cymbalta but Dr. F and Rassie are just going to work on weening him off of it completely.  Rassie actually hasn't taken any yesterday or today and we've had no episodes.  Dr. F did tell Rassie he is a health risk right now because of the blackouts and not to be holding the babies until the episodes stop and we're completely sure its the meds that were causing it. 

Rassie also has another neurology appointment coming up on the 28th.  His last nerve study came back "normal with delays".  This is what is giving Dr. F the impression that Rassie will fully recover, it will just take time.  They are also going to do a more extensive nerve study on the 28th.  I am not sure of the name, it's 6 words long!  I will get back to you with the name of it.

Okay! I think I covered everything.  It's hard to remember it all.  But if you have any questions feel free to ask and I'll try to answer them when I can.  Thanks for the continued support.

God Bless & Good Night

*PM&R = Physical Medicine and Rehabilitation.

An Oldie but A Goodie

I love happy memories