On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Monday, December 21, 2009

Still Waiting

We are still waiting to hear back on when Rassie's physical therapy will be scheduled.  We know it will be 3 times a week though.  The nurse case manager for worker's comp is on vacation. Which should not make a difference because there is another lady handling her cases while she is gone.  But the hospital had also mentioned not setting up to start PT until after the first of the year.  I am sure everything is hectic with Christmas and New Year's right around the corner, literally.   Today my brother and I helped Rassie stand and walk while he did his at home PT.  There is a spot on his left foot.  If you firmly press it it sparks some nerves that gives him controlled mobility of his left leg.  So we did this a few times and Rassie used the walker.  I got a little upset when he was dragging his right foot and was not stepping on it right. Instead it was turned and he was pretty much stepping on his ankle.  I made him stop and sit down.   It worries me he doesn't realize what he's doing because he still can't feel his feet and legs.  I don't want him doing more harm than good.  So next time he / we just have to be extra careful.   Rassie is also coming down off of his pain meds slowly.  Dr. F cut the dilauded in half and cut one pill a day off of the slow release morphine and soma.   This wasn't a problem because Rassie was already taking himself down slowly on his own.  His pain level in his back is getting better and better.  I hope that means the swelling is going down and the nerves will start conducting like they should soon.
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Rassie talked to the oncology nurse today after labs.  His WBC is down to 7.6K Woo Hoo!  Great numbers, well within normal range.  I am not sure when they will be checking to see the decrease in abnormal cells but his next real appointment is January 25.   Rassie's calcium is also a little low.  They told him just to add simple things like cheese into his diet.  He loves to drink milk but lately its been upsetting his stomach with all the meds so he hasn't drank as much.  Also, his uric acid levels are back within normal range and so he only has to take allopurinol twice a week now.   They also suggested extra strength tylenol for the body aches. And they are 95% sure the soreness and body aches are from the Gleevec.  That's about it for now.  I'll update if I remember anything else.

God Bless & Good Night

2 comments:

Holly said...

Glad to hear his WBC levels are good!! I hope he feels ok as he gets weaned off his pain meds a little.

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