On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Monday, December 7, 2009

Unexpected Appointments

Rassie had a followup with his primary this past Friday.  Today the rehabilitation clinic called to say they finally got Rassie scheduled again with neurology for the 14th of this month.  Apparently, his primary didn't think that was soon enough and called neurology saying this was an emergency and he needed to be seen ASAP.    Which leads to our exciting day.  No one ever called back to tell us they moved up his neurology appointment for TODAY!  So at 12:30 as I am getting the kids cleaned up and ready for nap the hospital is calling asking Rassie where he is at.  He's already 30 minutes late for his noon appointment.  So after snatching up the kids, throwing a diaper bag together and getting all 3 loaded into the car I zip us to the hospital by 1.   We are there until 3!  The neurologist checked Rassie over thoroughly.  Up and down his arms, legs, back, stomach, neck. Pretty much his entire body.  He decided he wanted to go ahead and do two nerve studies on Rassie so he walked us over a few halls.  There they did two different nerve studies.  One with electricity and the other with needles.  The kids and I waited in the waiting area.  It seemed like it took forever! And they weren't as thorough as they would have liked.  The bed in the nerve study rooms were too high for Rassie to transfer from the wheel chair so they had to make do the best they could.  Not sure when the results will be in but we are supposed to be getting a call with them sometime in the near future.  If not, Rassie has an appointment with rehabilitation on Wednesday.  I am hoping the nerve study will shed some light on what is going on and give us some idea on a time frame.
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Rassie is still doing good on the Gleevec. He has gotten nauseated a few times but is on a nausea med for all this other medications so it seems to be keeping things at bay.   Saturday he said his body felt a little sore, like when you're getting the flu.  But I got him up and moving and those muscles worked out and he felt much better. 

God Bless & Good Night