On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Monday, May 24, 2010

THE BIKE

Rassie finally picked a bike.  He did lots of research. He did lots of  in store test runs and finally came out with one he liked.  It was sturdy, he like the way it 'felt', and it had good ratings. 

My brother, Michael, took him to pick it up.  As soon as he got home he assembled it along with the help of the kids!  He's been working on it everyday and has started setting goals for himself.  

Below are a a few of the pictures I snapped while he was putting the bike together.  Sorry for the quality, they were snapped from my cell phone.

Being good and reading the directions!

Opening up some boxes while the kids help. They're so curious.


Lane, happy to pose for the shot while Daddy is hard at work.
And yes, that is Mickey Mouse on the TV!


Sweet Scarlett helping out while Daddy puts the seat on.


Almost Done!


Putting the finishing touches on, tightening everything up.
Excuse the mess in the background!


Testing out the finished product!

Thank you Again to the person who helped make this possible.

Thursday, May 13, 2010

A BIG Thank You

I'm not sure who you are. I do not know your situation.  I have no idea what motivates your generousity. 

I do, from the bottom of my heart, sincerely THANK YOU!

A few weeks ago I had blogged an update about Rassie.  In that blog I mentioned how Rassie and I were considering getting a stationary bike to help with the mobility of Rassie's right leg. (click here to read that blog).  Something about that blog reached out to one of our follower's and in return they reached out to us.

It probably took a week for me to realize someone was hunting me down! The kids had been sick. Rassie had phsycial therapy and his appointments.  I just hadn't been online much other than through my phone.  I use that mostly for facebook and pictures.   I believe it was late Friday night when I was checking all my messages.  Rassie and I both had one on  facebook. It was from a nice lady who works for a non-profit organization called Giving Anonymously. She explained to me who she was, what  GA was, and that she had sent several emails.  I also found a message from her on the comments here :)   .   So I went through my email.  Read them all.  And went to work researching Giving Anonymously.  Let's face it, this is the internet and we never know who we can trust.   I was very skeptical about what I was reading. 
 
It didn't take long to convince me that GA was a legit company. I found several articles that helped me to feel more comfortable with who they are and what they do.  And I read over their own personal site.  http://www.givinganon.org/ .  Here are a few articles I found about them.  Local charity Giving Anonymously nominated for MSN award and Making a Difference from the NBC Nightly News with Brian Williams in which they were nominated for an MSN Butterfly Award.

Rassie and I decided to accept the gift and verify our mailing address.

We were both blown away by the generousity of a 'stranger'.  We have no idea who this person is but any person willing to give such a gift will always have a place in our hearts.  Words cannot describe how thankful we are to have such a great support system out there.

Today we recieved the check from Giving Anonymously in the mail.  I did call the number and leave my name, the amount of the check and a short thank you.  Honestly, that thank you didn't do you justice.  We are much more appreciative than it sounded. I just couldn't find the words to express how greatful we are to you.  May God Bless you for what you have made possible for us.
 

For those of you wondering, let me get to it.  The person used Giving Anonymously to give us a cash gift that will go towards the purchase of a stationary bike for Rassie.  We're are now one step closer!  And in the future, when possible we plan on Paying it Forwad to another individual, whoever that might be.

Thank you all again for the support that you show to my husband, myself and my family.  We could not get through this without all of you and your support and prayers for us.

God Bless & Good Night

Wednesday, May 12, 2010

I guess I'm a  little behind on all my updates.  Rassie had an appointment with Dr. F last Wednesday. It was at the physical medicine and rehabilitatin department of Scott & White.  Dr. F watched Rassie walk this time. But he didn't poke and prod and all the normal stuff he does. I guess that's because he had seen Rassie 2 weeks prior to that and checked out all his accomplishments then! He wrote a prescription for Rassie to get an ankle brace for his right ankle. Sometimes he doesn't realize he rolls it or starts to walk on the side of it because he can't feel it still.  Rassie has done really good about watching his feet though to make sure he's standing on them properly.  Mainly just the right one.  He has great range of motion with the left. Another follow up to come in 2-4 weeks.

I am proud to say that Rassie has been wheel chair free for about the last 3 weeks. Prior to that he was only using the wheel chair as needed.   Rassie has also been walking with a cane for the last 3 weeks also. He as graduated from a quad cane to a straight cane (just a regular cane).  And the insurance has paid for him to go and get his own. He did have one on loan from the physical therapy dept.

We are all so proud of the progress he has made and is making.   Last October was a very hard time for all of us.  I still remember standing at the foot of his bed while the doctors asked him to move his toes and feet and he couldn't. I remember walking into his ER room with my brother and telling him we were in the wrong room.  My brother thought we were too.  On the phone Rassie had said he hurt his back.  When we walked into the ER room there was a man laying flat on his back. A neck brace, oxygen mask and all kinds of monitors.  Not something I expected to see, to say the least. It has been on long journey but we are making it.  Most importantly, Rassie IS making it and he IS improving.  It's all we have hoped for.

On another note, Rassie has an oncology appointment comping up on June 2nd.  Not sure what's in store for us yet.  The past few oncology appointments have been pretty calm and routine.  Go in, ask your questions, doctor asks his questions, check vitals, go over labs, etc.  Pretty much they make sure everything is going smoothly.  I have a feeling Rassie will be having a bone marrow biopsy in the near future but I guess I won't really know until after June 2nd.  I'll keep y'all posted!

Thanks for following along on our journey.  We really appreciated the continued support and prayers.  There's always strength in numbers and God knows that each and every one of you are praying!

God Bless!


An Oldie but A Goodie
Thought I'd share a smile

Friday, May 7, 2010

I want to cry

Tears of happiness.  I guess I haven't been on much with the kids being sick and 3 appointments for them alone this week.  Plus, we had Rassie's phsyical therapy and another physical med & rehab appointment.   I try to keep up with everyone through the internet on my phone and my options are a little limited there.

Ok, back to the tears of happiness.  There are some really kind hearted people out there.  Tonight as I was catching up on everything through the little screen on my cell phone I came across a message on Facebook from a volunteer who works for a non-profit organization called  Giving Anonymously. Apparently, they had made several attempts to contact me with little success.  But finally tonight, I read through some of the attempts and invesitigated the organization.

Someone who has been following my blog and Rassie's story was touched and wanted to send Rassie a gift.  They are helping us to get one step closer to buying Rassie a stationary bike that he can use here at home in an attmept to strengthen his legs and get better.  It literally melts my heart to know that there are people in this world who want to help.  I feel that our family is extremely Blessed to have the support of our friends and family in Rassie's journey to recovery.  I truely believe Rassie will beat CML and Walk again! 

Dear Kind Hearted Giver,

Rassie and I are very thankful for your generousity.  We never excepted someone to reach out to us with a gift like this.  God has wonderful things in store for you.  You are truely one of a kind. Thank you!

From the bottom of our hearts,
Amber & Rassie