On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Thursday, June 10, 2010

Sorry for the Silence

It's been a little bit since I updated and I truely apologize!!!!

First off, Rassie is doing well. 

Rassie had an onoclogy appointment on June 2nd.  Apparently his doctor couldn't see him that day so another doctor stepped in.  Overall, Rassie seems to be in good health   He's slightly anemic but he has been since this all began.  For some reason I can't remember the name of this but something to do with translocation.  Rassie's numbers have gone from 98% to 0.04%.  I feel silly not being able to remember at the moment. I'm going to have to pull out my notebooks tomorrow and refresh my brain! All in all it was a good but very short appointment.  Rassie goes back to see his regular oncologist July 6th.  We're going to go through more questions and answers and details of whats going on, what will go on, etc.  One topic that came up was Rassie's bone marrow biopsy.  It was over looked due to the back injury and although not needed to make a diagnosis they still want to do one.  The answer of when is still up in the air. I have a feeling the time is getting closer.

On another note, Rassie is WALKING! He's doing great. He does alot of walking without his cane when we're home.  It's when we're out an about that he uses it because you never know how the ground is going to look!  Rassie is still wearing a brace on  his right leg. Still no feeling.  One night he did have a tingly burning feeling on the bottom of his right foot one night.  This was a big sign. He hasn't had ANY feeling and then this! We were excited but it went away. Still praying that hematoma goes away. Soon than later if possible.  Rassie just finished up another round of physical therapy appointments.  We're now playing another round of 'wait and see' to find out if more therapy will be approved.  We're not very hopeful at the moment after a call from the nurse case manager stating she doesn't believe more therapy will be approved. 

We have also learned why the worker's comp insurance wants the doctor to state that "this is as good as Rassie's going to get".  Once this is stated there is a cap on the amount they pay out towards medical bills weekly.  If the doctor doesn't say this the worker's comp ins. has to pay 100% of the medical bills for up to 2 years.  We're still learning so much and expecting a phone call on even more information tomorrow!

Oh! Thanks again for our mystery gift giver!  Rassie has been using his recumbent bike daily.  He uses it for about 10 minutes at time.  He wants to start going longer intervals and I have faith that he will do just fine.

I wanted to share a few pictures of our outings lately to show just how proud I am of the progress Rassie has made. Watch for a seperate post full of photos to be coming soon!!!! Also, a better blog update

GOD BLESS & Good Night