On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Friday, October 16, 2009

So....

Today's white count was down to 26,000!  I am so excited that Rassie is doing do well on the hydroxyurea.  I am still ancy about the whole leukemia thing.  There are still questions I want answers to. Dr. R came by again today. She is going to see if she can get Dr. O (the lady who is going to be Rassie's oncologist) to come by and see him while he's in the hospital since we have no idea how long he will be there.   We did have someone stop by the room today and she mentioned that the oncologist deptartment is still working with the insurance to get the Gleevac covered.  Hmm, that's news to us.  But we did miss Monday's appointment and all that good stuff so who knows! *fingers crossed*

The back injury - Rassie seems to be moving his upper body a little better.  It is still really painful to do so because obviously your back is part of that!  He got to sit in a wheel chair for a while today.  He didn't sit long because sitting straight up puts more pressure on your back and it really got to him.  It also made his legs go completely numb.  Rassie's right leg is still pretty numb and lifeless. The good news: it feels tingly which means he does have feeling in it.  Now if we could just get his back feeling better maybe the feeling in his legs would come back.  The nuerologist explained what happened to Rassie's back like this: ' Think about when you hit your funny bone, how your arm goes numb and tingly for a minute or so.  Well Rassie's injury is like a badass version of that.  The cable hit his back causing his leg to go numb and tingly'   He said they would hope it would get better anywhere from a few days to a week or so. 

The MRI came back and it confirms a herniated or slipped disk.  The neurologist said the slipped disk doesn't really explain the numbing of the leg and only part of the extreme pain in the back.  But, the cable hitting Rassie in the back does explain his symptoms.  So I guess we're still at a stand still with what is actually wrong?

The physcial therapy physician came by this afternoon.  She is hoping that we can get Rassie moving a little more.  That will get him from the acute care unit to the rehab unit.  Once he is in the rehab unit they'll work on helping to get him even more mobile so that we can move him home.  She thinks its in our best interest right now to wait until the pain he's having subsides some and he can move himself around more easily (from bed to wheel chair, etc) before we consider moving him home.  They are taking into account that we have 2 small babies at home already and it would take too much out of me to have to care for him too.  Which is a good thing. Man oh man am I ready for him to come home!   But I will do whatever it takes to get him better. And I will wait as long as we need to make sure everything is ok.

2 comments:

Sara said...

Good news!! I am continuing to keep Rassie and your family in my prayers! I know you are ready to get him home!!

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