On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Friday, November 13, 2009

Amazing News

The oncology case worker, K is a miracle worker.  He took Rassie's case and went straight to the insurance with it.  Got the last test the insurance company requested done on Wednesday and called us this morning to say Rassie HAS been approved for Gleevec.  The monthly co-pay is much lower than anticipated and I am so greatful for that.   The oncology dept at the Glenda Vasecek Cancer Treatment Center at Scott & White has offered to pay for the first months supply.  How nice is that? Thank you S&W.  And K is getting us in some other programs to help offset the cost of monthly copays, any hospital stays and other expenses that might come our way due to the CML.

Rassie's Gleevec should arrive in the mail early next week and he should be starting treatment either Monday or Tuesday. Which ever day it happens to come.  I want to thank all of you who have kept us in your prayers and thoughts.  The power of prayer is awesome! 
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Rassie has been doing well.  Yesterday I did his physical therapy exercises with him.  He stood with the walker 3 times for about a minute each.  He did such a great job.   Today the PT assistant came.  He stood with the walker twice and took a few small steps.  He is such a trooper.  Alot of his weight goes to his arms, then to his left leg and he puts the least weight on his right leg.  He still has lots of shooting pain when he stands but he is pushing through it really well.   We have a long road ahead of us but I have faith that he will regain feeling in both of his feet and his right leg and that he will be able to walk again with no problems.  The doctors are very optimistic that this is only temporary paralysis and he will get better.  It will just take time.

All of Rassie's follow-up appointments have been scheduled for everything from the CML to the Rehabilitation.   Plus his weekly labs are set up again to watch his WBC.  There has been no more talk about a bone marrow biopsy but I am sure they will still want to do one eventually.  The next oncology appointment is November 23rd so we will find out what our next step is at that time and get all of our questions answered.

Thank you for your continued support.
God Bless & Good Night

6 comments:

Annie - Steven's mom said...

WONDERFUL news! Oh wow. I have been holding my breath, hoping so hard that the Gleevec approval would not take too much longer.

You both certainly have a lot going on right now, but its going in the right direction again...... great!

Have a good, gentle weekend.

love and light
Annie
Steven's mom
http://livingwithcml.blogspot.com

Sara said...

PRAISE THE LORD!!! I am so happy to hear that! God is working miracles in your life now!!

Holly said...

I am so happy to hear that it is FINALLY approved! Yay for your case worker!!

I know Rassie will make great progress if he keeps working hard like he is!

MommyIvy said...

I'm so glad that the medicine was approved. That has to be a great relief.

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