On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Wednesday, November 11, 2009

Another Test

The oncology case worker called today.  He has talked with our insurance. They have not agreed to cover Gleevec yet. They want another test done.  It's a simple blood test to verify that Rassie has the Ph+ CML. (if you look to the right side of the page you can read more about Ph+ CML)   I have to take Rassie in to do labs today anyways so they are just going to take the extra blood they need.  After labs we're supposed to stop by K's (the case worker) office and see if we can't get Rassie's appointments moved up. Because of the whole work injury appointments got pushed back and moved. Now his next appointment isn't until December sometime.  But we're going to get that worked on and reschedule. 

We have been nonstop here at home. There has been a little downtime to relax. Rassie is taking it easy. But me! I have been going and going and going. Babies, baths, feedings, dinner, dishes, laundry, floors, bathrooms, start all over again and go..................  It's not as bad as it sounds.   Rassie has a homehealth nurse coming everyday to check his vitals and some of his cuts and scrapes to prevent infection.  And a physical therapist comes 3 times a week for the obvious reasons.  Rassie has what is called a hemotoma on his back.  It is what is causing alot of pressure on the nerves and most likely the cause for the loss of feeling.  It could take a while for this hematoma to dissovle and go away.  It is very painful but we have been keeping it undercontrol the best we can.  The physical therapy is to help keep his muscles built up and in use.  Think of the old saying ' Use it or Lose it'.  We definitely don't want Rassie to lose the use of his legs and muscles so its work, work, work!  He is such a trooper. 

3 comments:

Holly said...

Is the hematoma the kind that can benefit with blood thinners? Yep, gotta keep those muscles strong!!

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