On September 25, 2009, Rassie was diagnosed with Chronic Myelogenous Leukemia. His symptoms: Swollen Feet and bruising. We never exepected a diagnoses of Leukemia. The Doctors and we ourselves, are very optimistic about the treatments available. We know that we have a long road ahead of us and we hope that you will support us on our journey to recovery.

Tuesday, November 3, 2009

Hooray For Weekends

Rassie got to come home two days in a row on a pass this weekend.  Everything went pretty smoothly.  He's able to fit through all the doors except the master bath.  We have a chase loung and that's where he set and relaxed.  It was the perfect spot for him. He transitioned to the car really well also. The PT Cruiser is just the right height. Now I wish we could use the Journey because I didn't have the space for a wheel chair and a stroller in the back of the Cruiser!   I got to see Rassie doing some physical therapy.  He is able to kick his left leg out to do leg raises. He tries a little with his right leg. It doesn't go as much.  He also lifts knee to nose  (not actually that far but up like that) and the PT helps him do those.  He did a great job. He also has to do bicycle pedals with his hands to keep his arms moving and in shape.  Yesterday in PT they stablized him enough so that he could stand up and walk with a walker. He didn't go far but its an improvement from the parellel bars.   It really hurts through his right foot up through his leg and into his back.  But he IS doing it.  I just keep reminding him how proud I am and that he is doing an awesome job.  We've started taking little trips outside to the Healing Garden when the weather is nice. I think it does him good to get out and get some fresh air.

All of the doctors working on Rassie's rehabilitaion case were supposed to have an evaluation meeting today and let us know approximately how long he will have to stay and a date to look forward to for coming home!  I am hoping sooner rather than later but if not I will survive a little longer without him next to me each night.  My main hope is for him to get stronger and better with each day so that he will walk again. And with any luck,  back to his old self again!

Not much news on the CML.  His white count numbers are still down. Not where they are supposed to be but pretty close.  The Oncologist Case Manager was supposed to work on the insurance coving Gleevec yesterday.  I have not heard anything yet.   That's a different department from where Rassie is at and so there are 2 seperate case managers that we are trying to keep seperate since one is being paid for by worker's compensation and the other by our own health insurance.