A much needed update

AH! I feel like I haven't been on here in forever. The rush of everything going on keeps me busy.  

Rassie had an oncology appointment today. Everything went great. The doctors are all so nice.  The Gleevec still has not made it but is being UPSed to us by Wednesday.  There was a misunderstanding somewhere down the line and the pharmacy claimed they never got approval from the insurance but the social worker faxed that information personally but all is well and it WILL be here by Wednesday.  K has also offered to help with paying a few months copayments. I think that is a very nice thing of him to do. Please pray that God thanks him for such generousity.   Rassie's WBC* was down to 8,200 at last weeks draw.  That is great news.  Today Dr. O said there is no need to take the allopurinol anymore and that as soon as Rassie starts the Gleevec the hydrea can go as well.  I am so excited that Rassie will finally be starting the 'real' treatment.  And I Pray that this treatment does wonders for him.

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Last weekend Rassie lost feeling in his left leg. Originally it was the right leg and left foot.  Rassie spent Tuesday night at the ER until late.  The doctors could not find anything new so they sent him home since he had an appointment scheduled in 2 days with the rehabilitation doctor anyways.  Come to find out they diagnosed his new symptoms as swelling from an enlarged spleen that they blamed on the CML.  BUT we got that taken care of.  When Rassie was at his oncology appointment today he asked Dr. O and Dr. W if the CML could be causing any of the symptoms pertaining to his back injury and was told that they are in NO WAY related.  They made sure to put that in his medical records.   This past Thursday Rassie saw the rehab doctor.  There was a mix up there too. They called him with an appointment but it didn't get put into the computer. The good news is that the doctor went ahead and saw him.  He said Rassie's new symptoms are just late symptoms from the back traume and that yes that does happen sometimes.  There was lots of poking and prodding and although Rassie couldn't feel it the Dr. was seeing twitches. He said that was a good sign because it meant something was going on and it was still working.  Rassie's left leg is still numb but I have noticed during the night he is able to move it.  I told him and so he tried during the day.  If moves pressure off of the knot (also the hematoma) on his back and more to his left side he is able to move that leg.  He still can't feel it other than a burning sensation off and on.  Dr. F is going to follow his case and set him up to see a nuerosurgeon again.

That's about it for now

God Bless & Good Night